Nikki's Story:
April 17, 2023 by Nikki and Anne Heart
Although we wrote this post together, we have chosen to present the following story through Nikki’s experience.
YOU CAN LEARN through my experience
In February of 2011, at the age of nineteen, I started taking the prescription drug Abilify along with three medications I was currently on for depression.
I was told Abilify will be used as on add-on medication, since my current medications weren’t working.
“Abilify would add the extra boost needed to help with my depression,” my counselor informed me.
After seven days, I felt lightheaded and overall sickness.
I immediately was told to stop one of my other medications. Of course, this initiated a withdrawal.
I was then told to go back on the medication to withdraw slowly.
After weeks on Ability, my overall wellness continued to be far from good.
I increased and decreased my other medications, while the Abilify dosage stayed the same for the time being.
After a month’s time, I was now told to increase Abilify from my current dosage of 2 mg to 3 mg. To accomplish this increase, I would have to cut a piece from another pill.
My new dosage was assumed to be 3mg.
Cutting of the pill was never accurate. It would split and crack in the wrong place even with a pill cutter. I continued trying to take an accurate dosage, but had difficulty succeeding.
My depression increased more and more every day. I was advised to increase to two 2mg pills for a total of 4mg daily.
Immediately, my overall mood declined. So of course, I was advised to decrease back to the original 2mg.
After a month of still feeling horrible, I was told to increase the Abilify back to the 3mg daily, again cutting the pill.
Within a day, I felt shaky, quick tempered, and eating more than usual.
After months of increasing and decreasing Abilify along with my other medications, my health was not improving. The new solution was adding another drug, Wellbutrin.
By early winter 2012, my overall wellness was simply horrible.
Unfortunately, being away at college, I could not get a doctor to treat me while I was out of state. My only option at the time was to remain with my same counselor, a nurse practioner.
In 2013, after over three years of mistreatment, I was finally able to switch to a psychiatrist in my home area.
With her having five-star reviews, I once again had hope for my overall wellbeing.
Over the year I saw this psychiatrist, my medication was changed weekly than monthly. Never having any relief.
In fact, my overall symptoms continued to worsen, and my overall health was deteriorating.
In spring of 2014, I switched to another psychiatrist. Again, highly rated.
And again, I was prescribed the same protocol treatment plan of medication.
I Increased one drug, decreased another one. I tried a new drug and stopped another one. I played the trial-and-error game for close to another year.
Still, I continued to have hope.
My reaching point came when this psychiatrist out of nowhere decided I should see a colleague in his practice instead of himself. This brought me to a new low.
I came to the realization that I was living a life of drugs, and I didn’t know how I got here.
I now was losing all hope for a better lifestyle.
Still striving for the life and health I wanted to obtain, I once again changed to a different psychiatrist.
The new psychiatrist again came highly rated with many years of experience in the field. I, along with my mom, had confidence in her knowledge and ability to help me.
By the time I first saw the new psychiatrist, Abilify was taking a toll on me mentally and physically. My mom insisted it was more detrimental to me than not.
I discussed this with my new psychiatrist, Dr. S., a motherly figure who seemed compassionate and had the willingness to help.
I was told by her that Abilify was part of my base medication, and it should be left alone. She did, however, switch the Abilify to nightly instead of a morning time.
I eliminated a chasteberry supplement under her advisement.
At this time, I was prescribed a new drug to add to the mix, Depakote.
In a couple of weeks, she increased the new drug as well as the Abilify. Again having me cut the Abilify pill to get a 3mg dosage.
I saw Dr. S. from November 2015 until November 2016.
During this time on her medication plan or as she referred to it as “the cocktail,” my health drastically deteriorated both physically and mentally.
I mentioned numerous times about the Abilify and the side effects. I also mentioned inaccuracy of the dosage by cutting the pill. But I felt my comments went unheard.
Eventually, I took charge and insisted on getting off of Abilify.
To begin my withdrawal, I was required to cut the tip of the abilify pill once again, so I could gradually lower my dosage.
I continued doing this for a few months until on September 1, 2016, when I had a major reaction after taking my Abilify.
At first, I became extremely high and then I mentally crashed down.
I felt as though my brain was splitting apart. I started to hallucinate and my thoughts went wild.
This lasted for a few minutes and stopped. Ten minutes later, it started again. To this day, I believe I had a seizure, but no one would attempt to confirm this.
After this episode, I was extremely scared to take Abilify; but I was also scared to stop it all at once. So, I switched to Abilify liquid in order to be able to take smaller dosages during detoxification.
When I took the Abilify liquid on the third day, I immediately started to vomit and hallucinate.
It was at this point I realized I cannot do this anymore. I truly believed my brain would not survive. I stopped Abilify completely…
and withdrawals came the next day.
The Facts
Abilify was prescribed to me by four different medical health prescribers from February 2011 to September 2016 even though I openly discussed the side effects I was having.
By my last dosage of Abilify, I experienced major depression, irritability, a rash, high anxiety, stomach burning, crazy thoughts, hallucinations, changes in appetite, weight gain, speech loss, memory loss, physical pain, and changes in vision.
Most of these are clearcut Abilify side effects. Some are from the combination of drugs prescribed to me as well as the withdrawals from the increases and decreases of these drugs.
After seven years on prescription drugs, I realize most of what I went through I still cannot fully comprehend. I live with the realization that years of my life passed that I have little to no memory of.
My story unfortunately is not unique. I know that I am not alone with this journey. This is why I write with my mom to give you the information and strength needed to find a wellness path that is right for you.
What I have learned, is to
- Be aware
- Question
- Know
- and most importantly, Trust yourself
Now, I want to share critical information with YOU…
- Research the medication prescribed to you
- Determine what treatment plan works best for you
- Recognize that there are treatment options
Facts YOU need to know about Abilify
- Know how your medication should be taken
- Verify if your your medication can be cut, opened, or altered in any way
- Realize cutting or altering a medication can change how the drug is released into your system
- Be Aware of misinformation regarding medication
Find YOUR Path
Learn more. Live healthier!
Note: All information in “Nikki’s Story” are based on detail journals covering seven years of Nikki’s life on prescription drugs.
Medical Disclaimer:
We share informational resources that are intended to help you with your self-care plan. We are not professionals. We write based on personal experience and personal research.
Nothing on this Website is intended to be taken as medical advice. The information provided on the Website is intended to encourage, not replace, direct patient-health professional relationships. Always consult with your doctor before altering your medications. Adding nutritional supplements may alter the effect of medication. Any medication changes should be done only after proper evaluation and under medical supervision.
General Disclaimer: This site contains links to other internet sites. We are not endorsing any products or services in these sites nor are we endorsing or did we approve information within these sites. Each site contains its own “Privacy Policy”,